Lynch syndrome
Frequently Asked Questions
I've just found out I have Lynch syndrome. What happens now?expand_more
You should be offered regular colonoscopy and advice on reducing your risk. We can plan your surveillance and coordinate with your GP and genetics team.
Will I definitely get cancer?expand_more
No. Lynch syndrome raises your risk, but many people never develop cancer. Regular colonoscopy means polyps are removed and any cancer is usually found early.
Should my children be tested?expand_more
Each child has a 1 in 2 chance of inheriting it. Testing is usually offered once they are adults, through a clinical genetics service.
Why do you use dye spray?expand_more
Polyps in Lynch syndrome can be small and flat. A harmless blue dye sprayed onto the bowel lining makes them easier to see and remove.
How often will I need a colonoscopy?expand_more
Every 2 years, starting at 25 or 35 depending on the gene, and continuing until 75.